I’m Kimberly Marincik. Living my best life, healthy, happy, and at peace.

Hi, my name is Kim. I am 45 years old and a single mom to two boys living in Colorado who have a rare and incurable genetic condition, I also have this rare and incurable disease. It’s called Danon Disease. I am an advocate for our disease and speak at many events for rare disease, and heart patients around the US. I run a nonprofit foundation for Danon Disease and a support group on Facebook. I have fought this disease my entire life. I am a fighter and do not give up easily.

I am also a big lover of Hope and Faith. This has kept me afloat the last 19years as I found out what our rare disease was called and had to face many days of worry, hurt, sadness, anger, pain, anxiety and loss of that hope and faith. I have pulled myself out of depression more than a few times going through this alone. I have been through more than anyone should in one lifetime but you will never find me giving up. I will always stand up and have that hope and faith bring me back to reality. It is a beautiful thing to be alive and each day I wake up I thank the lord and keep pushing. Follow my website for updates and stories each week of this crazy life of mine.

A few years ago, my youngest son got a heart transplant, he was 17. My oldest son got gene therapy; he was 18. Both boys are now 19 and 22 and stable – not cured. They are what keep me going as a single mom. I am working a full-time job at home and as of late learning to be a content creator on Tik Tok. I have so much to share with you all and plan to do it here. I want to share my favorites, my quotes, my hopes and dreams, my health journey with a GLP1 med, my VSG journey in 2022 and life in general. I want to reach everyone I can with my story and let them know whatever you are going through there is always someone else out there with it worse. So, no matter what, wake up, dress up and smile. Life is worth living!!!